Skip Navigation

Advice concerning epilepsy

Travel Forums Australia / New Zealand & The Pacific Advice concerning epilepsy

Page
  • 1
  • 2

Last Post

1. Posted by outbackdan (Budding Member 17 posts) 10y

Hi guys,

My girlfriend and i are still planning on travelling around australia for a year on a working holiday visa. However.. i was just wondering if any of you knew of anyone who has done this who has epilepsy.. or maybe you did?

I just need some advice concerning my girlfriends medication thats all.. do i have to register to ONE doctor.. and have to keep going back there to get her medication (which would be fine). Or could we register with different doctors depending on where we were?

My girlfriend and I have always wanted to travel you see and her family like to keep her boxed up because of her epilepsy.. and i reakon travelling will do her the world of good.. it will increase her confidence and people skills.

Any advice on this matter would be greatly appreciated.

Thanks alot for your time guys and keep safe!

Danny

2. Posted by smythy (Full Member 237 posts) 10y

Hi dan! I dont know much about your girlfriends medication etc im afraid but i just wanna say, go for it man and i wish you both all the best!

I have a brother (24) who has epilepsy and i do feel for him - he's still at home being boxed in by my parents not in a bad sense but just more protective of him as he's had it quite bad these past few years.

He's been to London last year and had his medication changed and is doing much better although not able to work yet but i really feel he needs to get away from my parents for his own good, but little does he realise this - he's so reluctant to go anywhere away from home as he thinks my mom and dad would be disappointed with him or should i say expect the worst will happen to him.

So im just taking this opportunity to express my attitude to you both seeing i can understand your situation from my own brother

All the best

3. Posted by outbackdan (Budding Member 17 posts) 10y

Smythy! Thanks alot for your reply mate!

My girlfriends epilepsy isnt that servere as far as im aware and only has seizures whilst asleep or very early in the morning. I have yet to witness her seizure and we've been together for a year and 6months.. theyre not frequent at all.

She has always wanted to skydive, bungee jump and travel the world. Unfortunately the first two she is unable to do because of her epilepsy. Last year i took her to have a microlite lesson and she loved it!

Ive also always wanted to travel the world and im not prepared to leave her behind because of her condition. Ive read on an epilepsy site that epileptics are encouraged to travel because it gives them more independence as alot of parents try to keep them in a protective bubble.

You can understand why your parents are protective of him though cant ya? As i can with my girlfriends parents.

Would you not go travelling with your brother? If your parents know your with him then its not so bad right? It might just be what hes been waiting for?

Thanks alot for your post though matey and i wish you and your brother all the best.

Dan

4. Posted by smythy (Full Member 237 posts) 10y

I wouldnt mind him coming with me at all, but it takes a lot of persuasion to get him to take that initial step of getting out for himself. Also he's loaded with medication and sleeps loads but i think he does needa get out!

I find him really hard to manage because he's so slow to make decisions as its been done for him most of his life by mom and dad and it frustrates me when i give him a chance and then he goes along with what im doing etc and then turns around and says something like "you didnt do what i wanted to do"

Maybe i need some lessons on patience!

5. Posted by outbackdan (Budding Member 17 posts) 10y

Yeah i totally understand what you mean mate.

I was told that before my girlfriend had been diagnosed with epilepsy she was real slow and used to day dream alot (mini seizures but no one clocked on). No one knew she had epilepsy because her seizures only happened very early in the morning.. (being in a room on her own) and she also got into trouble at school (because she'd forget things that had happened in recent days gone by).

How often does he have to take his medication then? My girlfriend only has to take two tablets a day.. when she wakes up and before she goes to bed..

Its been good to talk to someone about this though so thanks for listening. I still need to find out how we can go about obtaining her medication in australia. Ive emailed an epilepsy foundation to ask whether her medication is even available and theyve assured me it is.

6. Posted by smythy (Full Member 237 posts) 10y

No problem danny! (funny enough my bro is called Daniel)! Im not trying to brag about it all just trying to help you both!

He takes maybe 6 pills bout 3 times a day! any wonder he sleeps!

On the subject of getting your medication in Oz id say bring a copy of your UK labels so they can get the right ones even you do go. (that just reminds me - my bro met a mate from NI when he was in London and theyve been to Oz (i dont know for how long tho) for a while so i could find out what they did for ya!

7. Posted by maba (Inactive 227 posts) 10y

Hi Danny,
Sounds like the medication situation will be fine. The only suggestions I would make are:-

1. Carry a note from her doctor spelling out the treatment she has had to date & what medication she in on.
2. Get two lots of the medication & keep it separate so if one is misplaced you have the other, this would be especially recomended if you are travelling in ouback areas, as it may not be readily available there.
3. I assume the medication is only available on prescription so she will need to see a doctor in Oz. Check also (pardon my ignorance) if hot or humid weather may affect her??

If managed, there should be nothing stopping her & I admire your comcern and preplanning, it will make for an enjoyable experience for you both.
Cheers - ;)

8. Posted by majito (Respected Member 442 posts) 10y

Hi Danny,

If you send me the medication details I'll run it by my local medical centre and pharmacist. I live in Sydney. Just email me from this forum, no need to post a reply. I'm good friends with the owners of this site so please be assured I'll take your email seriously.

Cheers

Majito

9. Posted by outbackdan (Budding Member 17 posts) 10y

Quoting smythy

No problem danny! (funny enough my bro is called Daniel)! Im not trying to brag about it all just trying to help you both!

He takes maybe 6 pills bout 3 times a day! any wonder he sleeps!

On the subject of getting your medication in Oz id say bring a copy of your UK labels so they can get the right ones even you do go. (that just reminds me - my bro met a mate from NI when he was in London and theyve been to Oz (i dont know for how long tho) for a while so i could find out what they did for ya!

Haha cheers matey! You've been such a good help thanks alot. And yeah it be great to hear what they got up to in oz!

Quoting maba

Hi Danny,
Sounds like the medication situation will be fine. The only suggestions I would make are:-

1. Carry a note from her doctor spelling out the treatment she has had to date & what medication she in on.
2. Get two lots of the medication & keep it separate so if one is misplaced you have the other, this would be especially recomended if you are travelling in ouback areas, as it may not be readily available there.
3. I assume the medication is only available on prescription so she will need to see a doctor in Oz. Check also (pardon my ignorance) if hot or humid weather may affect her??

If managed, there should be nothing stopping her & I admire your comcern and preplanning, it will make for an enjoyable experience for you both.
Cheers -

Hey Maba, Thanks for your reply! It means alot. About numbers one and two, ive already thought of about doing those, especially number two. It is a very good idea to keep two lots in two different places.. maybe she can carry a load and ill take the other?
Yeah her medication is only available on prescription as far as im aware. I dont think the hot or humid weather would affect her but ill keep it in mind. She has told me before that the two MAIN things that would cause her to have a seizure would be STRESS and LACK OF SLEEP.
Ive told her to book an appointment with her doctor to get him to write a note down with her medication stated and also for her to ask him any questions she might need to ask.
Thanks alot again Maba! Take it easy..

Quoting majito

Hi Danny,

If you send me the medication details I'll run it by my local medical centre and pharmacist. I live in Sydney. Just email me from this forum, no need to post a reply. I'm good friends with the owners of this site so please be assured I'll take your email seriously.

Cheers

Majito

Hey Majito, Thanks also for your reply!
I shall be emailing you any second now!
Thank you!

10. Posted by Wildrover (Budding Member 14 posts) 10y

How you doing mate?

took a quick look at the thread you started just out of interest and it sounds like the best thing for you and your girl to do is just get out here.

I've had epilepsy since I was 16 or 17 (bout 8 years now), and suffered around 18 bad seizures before it was properly diagnosed. Like your girlfriend's, mine is only brought on around morning time, usually if I have had little sleep or food and been pushing my system to the max (ie too much partying). I've been on sodium valproate since and usuallu take between 1 and 2 tablets a day, which keeps me levelled out, as long as I take care of myself.

Ask here to speak to her doctor, mine gave me 3 or 4 mths medication along with a repeat prescription note that the pharmicists over here will honour.

I've been over in Oz for just over 3 mths now and have no trouble at all. Been skydiving and scubadiving. It My epilepsy has not been an issue in either. They usually just want to cover their own asses with insurance, so its a decision u have to make yourself. I just didnt tell em.

If she knows her epilepsy, then she also knows her limits, but the doctor is the best person to see.

It's not impossible tho mate, in fact its not even an issue. if you guys want to travel then just do it. the rewards far exceed the risks.

all the best mate and i hope it works out.

neil